The Power of Personal Narrative: My Experience with SACHRP, the FDA, and Bioethics

Gianna McMillan

doi:10.1007/978-3-031-40379-8_11

The Power of Personal Narrative: My Experience with SACHRP, the FDA, and Bioethics

Gianna McMillan

Research output: Chapter in Book/Report/Conference proceeding › Chapter

Abstract

In this narrative account of serving on a subcommittee for the Secretary’s Advisory Committee for Human Research Protection (SACHRP) and as a Patient Representative for the U.S. Food and Drug Administration (FDA), the author reflects on the challenges and rewards of sharing personal narratives in service to patient advocacy. Special attention is given to the ethical dimension of narratives; the ways that stories can heal, represent, and teach; and the importance of strategizing how to deliver narratives to achieve successful ethical reflection and promote patient advocacy.

Original language	English
Title of host publication	Ethical Issues in Community and Patient Stakeholder–Engaged Health Research
Editors	Emily E. Anderson
Place of Publication	Cham
Publisher	Springer International Publishing
Pages	143-149
Number of pages	7
ISBN (Print)	978-3-031-40379-8
DOIs	https://doi.org/10.1007/978-3-031-40379-8_11
State	Published - 2023
Externally published	Yes

Publication series

Name	Philosophy and Medicine
Publisher	Springer International Publishing

Keywords

Advocacy
Bioethics
COMPLETED
Email
Email Gianna McMillan
Narrative
Patient
Protection
Pure
Story

Access to Document

10.1007/978-3-031-40379-8_11

https://doi.org/10.1007/978-3-031-40379-8_11

Cite this

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